Video from Professor Hughes himself

The Prof explains about the terrible way that pregnancy is affected by having Hughes Syndrome primarily in these clips. Multiple miscarriages are often the time when women first get diagnosed with Hughes. I had 3 very early miscarriages over the years, but put them down to "one of those things" or "bad luck" or "my fault for working too hard".

When I got ill in 2007, it was only going back over my medical history - growing pains when I was little, teenage headaches and the multiple miscarriages, that I was able to tick more of the symptoms of Hughes. It is a complex condition, not ALL about losing babies, some men have it!! My Dad had it and it is very sad that I knew that he had it, but he or we didn't realise that many of his symptoms towards the back end of his life were Hughes related...I didn't realise that I had Hughes until after he died. He told us he had "sticky blood" - when my symptoms, lead me to investigate lupus, it wasn't an exact fit, I kept on investigating and I came up with Hughes - all of the symptoms fitted apart from having an actual heart attack or stroke...Hughes is also known as Sticky Blood!!!! well....blow me!!! that's why Dad used to fall asleep every evening and he always had odd pins and needles and storming headaches...he had 2 heart attacks and a stroke. The complication of his diagnosis was that he was a smoker and all his symptoms and problems were put down to that....We all know that smoking isn't good for us - I gave up last year when I got my diagnosis, but sometimes something else is going on in our bodies and it isn't all to do with smoking, although it doesn't help!!

Prof Hughes doesn't practice in the NHS any more, he can be seen privately at London Bridge Hospital, but the waiting list is very long to see him.

Regards