NEXT LONDON MEETING IS Tuesday 23rd June 2009 The London Support Group monthly meeting VENUE has changed for this month and will be held from 5.30pm at Starbucks Cafe which is at the bottom of the escalator inside Waterloo Railway Station. Friends and family of Hughes Syndrome patients are also welcome to the meeting on Tuesday 23rd June 2009 from 5.30pm. Ann Sumra the Support Group Leader for London and will be there to welcome you from 5.30pm but is unable to be contacted by email at the moment due to computer problems. Ann apologises for the short notice and for any inconvenience this might cause.
Regards Hazel Edwards
Hazel sent me a message on facebook this morning, she wanted to post something on the blog, but I haven't left the followers tool on - I will change that....this is what she want to say anyway....
Wendy, I love your blog......I never realised the impact my support forum has on people's lives till I read something like your blog. I'm so glad that I decided to start it 3 years ago. I have spoken to so many people like yourself who have gone on to be diagnosed in the Lupus Clinic in London after finding no real medical help locally. Lupus and Hughes Syndrome seem to be closely linked although you can have one without the other. It is difficult to diagnose but the awareness campaign by the Hughes Syndrome Foundation is helping. Stories like yours make the work on the support forum so worthwhile especially when I realise how much difference it has made to other hughes sufferers lives. I did try to post this message on your blog but I needed an ID and had no idea how to get one. I hope you are keeping well and maybe we'll have another get together in Manchester Trafford centre again this summer. xx Hazel
Thursday, 18 June 2009
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