Sorry to have been away so long...

The hot weather this year has completely floored me guys, I have spoken to other Hughies who are saying the same, some are even on Warfarin and they can't keep well all the time...the close weather, heat, sun and humidity are all things that I just can't cope with and it has sent me spiralling down into not wanting to do anything for a few weeks, I needed to recharge my batteries completely by just taking the kids to school and nursery and drifting through the 6 hours in between with a bit of readying, TV, DVDs, sleeping and thinking....I haven't felt well enough even to attempt to blog here, which is unlike me, but I needed to be in my cave and let no-one in until I had made friends with myself again, let alone any one else!!!

It is really tough to be ill EVERY day...I catch myself laughing at things, reacting normally to situations, then before I know it - something reminds me of my problems, a twinge in my back, a sudden numbness in my arm, a shooting pain in my chest or another mouth ulcer stinging!!!

I am a lot luckier than a lot of people, I am a master of my own destiny to a point, I am lucky to live in the western world with all the medicines we have to keep up going...if I didn't take medication, I wouldn't be able to take the kids to school, I wouldn't be able to function at all....

It is raining here tonight, the grass smells very green and looks lush, it is a lot cooler than it has been, we needed this storm to clear the electricity in the air... my head is more clear, electrical storms play hell with my joints and my head pounds....

I solemnly promise to not go into my cave for a while and find you some more interesting bits about APS/Hughes etc. I never finished my story of my wonderful meeting with Dr Khamashta, the very sweet Dr Sangle and the local rheumatologists (boo!! hiss!!). I will do these posts for you very soon.

Thanks for reading....

Wendy

xx